From our interviews with different stakeholders, we found that family carers play an absolutely essential role in the home-based scenario. They had a lot of expectations put on them.
Being a carer is a full-time job, they have a lot of emotional and physical stress, with many carers feeling unsupported. They want to make as few mistakes as possible, but they lack the caring knowledge they need from the beginning. They want to hear about the experiences of people in similar situations, but they are also concerned about their data privacy. The government realised carers should be supported throughout, and there are many useful services available, but it’s difficult and time-consuming for carers to find them.
In addition, although the experience of taking care of a loved one is tough, it will become a precious memory.